MIRI for the Social
MIRI e HHT
MIRI SpA decided to link its name to HHT onlus, an association of patients, family members, doctors and volunteers of the rare disease HHT or Rendu Osler-Weber disease, to support it through sponsorships, projects and initiatives, contributing both to the dissemination of knowledge of the disease , and to the creation of the assistance network. HHT is a rare disease that affects 1 in 5,000 people and causes vascular malformations that can cause bleeding and other much more severe manifestations. It is estimated that, currently, 90% of those affected do not know they are.
Support for HHT onlus is part of a more comprehensive design to support charitable and social enterprises, contributing to scientific research, and attention to the environment.
FESTIVAL "SUI SENTIERI DEGLI DEI"
HHT onlus è Charity partner dal 2019 del prestigioso Festival “Sui Sentieri degli Dei”, rassegna dell’Alta Costiera amalfitana, al quale hanno partecipato Artisti di fama nazionale ed internazionale grazie alla segnalazione della MIRI SpA, storico sponsor del Festival. Grazie a questa iniziativa sono stati testimonial dell’associazione, per la diffusione della conoscenza, dall’attore Neri Marconè al cantante Max Gazzè, dalla cantante Tosca al comico Alessandro Siani fino alla cantante internazionale Noa.
A partire dalll’anno 2020 è stato, anche, istituito il PREMIO HHT onlus:
- anno 2020: Maurizio De Giovanni;
- anno 2021: Oscar Nicola Piovani;
- anno 2022: Michele Bravi;
- anno 2023: Noemi.
THESIS AWARD HHT
MIRI SpA, after having contributed to the campaign to disseminate knowledge of the disease through the friends of the Festival and its collaborators, this year wanted to donate 2 scholarships to support a new generation of professionals dedicated to HHT.
YOU CAN SUPPORT THEM TOO
Share this social cause and become a supporter. Find out in how many ways you can help HHT onlus.
